Saturday, October 25, 2014

Disney Blog Hop for Rett Syndrome Awareness

Happy Saturday
Welcome to this year's Blog Hop for...
Rett Syndrome Awareness
In this hop we will be showing you many Disney themed projects while sharing with you about
Rett Syndrome.
If you have just stopped by my blog to visit with me, thank you and welcome, but please start at the beginning of the hop with our
Hostess, Robin from
We would not want you to miss any of these wonderful projects.

So, grab yourself a Latte', sit back and hop along with us as we share our projects with you.
 October is Rett Syndrome Awareness Month, so I wanted to help get the word out and what better way to do that than with a blog hop.
Rett Syndrome strikes without warning. A girl with Rett Syndrome usually starts out as a happy and healthy baby. Then something goes terribly wrong. She loses the ability to speak, she can't use her hands to play with toys, or to even feed herself, and she may lose the ability to walk. 
Despite their physical disabilities, girls with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought.   
Rett Syndrome is caused by a mutation of the MECP2  gene on the X chromosome.  
Rett Syndrome is found in all racial and ethnic groups throughout the world, and in every socioeconomic class.  
Rett  Syndrome affects in 15,000 female births.  

*Symptoms of Rett Syndrome...

Rett Syndrome is a genetic neurological disorder that affects girls between 6 and 18 months of age. This regressive disease leads to lifelong handicaps, including loss of speech and voluntary muscle control, and is often misdiagnosed as Cerebral Palsy or Autism. Symptoms range from mild to severe, and almost always include...
*Developmental Regression or Plateau
*Near constant hand clasping or wringing
*Severe communication impairment
*Breathing problems
*Digestive issues
*Floppy arms and legs
*If able to walk, then with a shaky, unsteady gait, or toe-walking. But most do end up using a wheelchair for the most part.
*Slowing head growth
*Abnormal sleep patterns
*Transient loss of social engagement
*Poor circulation that can lead to cold and bluish arms and legs
Little girls with Rett Syndrome are referred to as the..."Silent Angels"
As they typically loose the ability to speak.
Many individuals with Rett Syndrome live well into adulthood, although there are some that do not get that chance and end up losing their battle to Rett Syndrome at a very early age.
Most people including Doctors are not aware of Rett Syndrome, so, please help me get the word out about Rett Syndrome and hopefully the more that know the faster we can help in finding a cure.

This cause is very dear to me, as my youngest Daughter had Rett Syndrome. She was almost three years of age before they discovered that what she had was Rett Syndrome, as she was first diagnosed with Cerebral Palsy. Even though she could not walk without help, was in a wheelchair for the most part, lost most of her ability to talk, lost the use of her hands, and would have multiple seizures everyday, she was a very smart little girl. Now, these were just a few of the things that she would battle each and everyday. My little girl lost her battle to Rett Syndrome at the age of nine. My goal is to help get awareness out so that one day there will be a cure and that no more little Angels will loose their battle.

For more information you can visit...

Now, are you ready for some blog candy???  We have a several wonderful and generous sponsors today...

1.  Lucy Kelleher
with Close to My Heart
$10 gift certificate for Close to My Heart products with Lucy 

Close To My Heart

2.  Dee's Delights Store
$20 Gift Certificate for Dee's Store

3. Heather Stafford with...
Gemini Red Creations
A floating locket and your choice of two floating charms

4.  Diana Larson with
$10 Gift Certificate for DLART Store

5.  Robin Lane with
A Collection of Snap Products by Simple Stories. Everything you need to put together your Disney memories.
The kit comes with an Album, a pack of Insta Pocket Pages, "Say Cheese" Journal Kit, and the "Say Cheese" Snap Pack.


Without further ado...Our Disney Projects.

For my project I put together a digital layout with a Mickey head snow globe featuring some pictures of my Daughters with Mickey, Minnie, and Goofy.

Name of this kit...
Mickey Vintage
Designed by...
Print and Fun
Be sure to head on over to....


for your next stop and see her wonderful project that she has made to share with you today.

If you get lost along the way here is the entire line up for today's Blog Hop.
 Robin L. ~

Thank you for hopping along with us today, I hope that you have learned something about Rett Syndrome and that you will help spread the word so that we can make as many people aware of this as possible. I also hope that we have inspired you to get your craft on.


  1. What an adorable layout Robin, fabulous photos with your daughters. Thanks so much for having me along in this hop and I hope much awareness is raised. - Eva Scraps

  2. What a sweet smile your daughter had. I am so saddened to hear that this disease took your daughter. I hope that we can raise the awareness that is needed. Sending you many hugs and thank you for allowing me to be a part of this special hop. Scrappy hugs, Connie

  3. such a precious layout! I hope many more people learn about Rett Syndrome today! thanks for hosting this great hop!

  4. What a beautiful layout and your little girl was beautiful. So very sad to hear you lost her at such a young age. Sending hugs your way. Marcia,

  5. Such a sweet layout! Love your snow globe! BL

    1. Hello Lisa, thank you for visiting our hop. And Congrats you are the winner of the Snap products from me with Create-A-Latte. If you could please email me with your mailing address so that I can get your prize to you. My email address is... Congrats again!

  6. Hi Robin, I had no idea about rett syndrome until this hop, so thankyou for bringing awareness.
    Have a blessed day
    DIANA L.

  7. Beautiful page and thank you for all those that i learned today!

  8. Thank you for educating us all on this disease. I am so sorry for your loss. What a fun layout you created! Take care Robin!

    1. Hello Ms. Teresa, I hope you are doing better. Thank you for visiting our hop. And Congrats you are the winner of the Floating Locket and two Floating Charms from Heather with Gemini Red Creations. If you could please email me your email address so that I can pass it on to Heather that way she can get you your prize. My email address is... Also, if you would like to go ahead and visit Heather's website here is her link...
      Congrats again!

  9. Thank you for educating me (and many others) about Rett Syndrome. Your layout is just precious!! Thanks for inviting me to be a part of your blog hop!!

  10. What a beautiful layout!!! I am your newest follower :-)

    Disney Girl

  11. Wonderful blog hop and raising awareness too! I just love that pretty layout--looks like a wonderful trip and memories for your family. love how it looks like a crystal ball.

  12. Oh Robin I am so sorry for your loss. Hugs and prayers to you.
    Thanks so much for sharing your photos of your sweet one.
    Thanks for hosting this hop to raise awareness.
    Crafty hugs,

    1. Hi Dawn, thank you for visiting our hop. And Congrats, you are the winner of the $20 gift certificate from Dee with Dee's Delights. If you could please email me your email address so that I can pass it on to Dee that way she can get your prize to you. My email address is... Congrats again.

  13. Very cute layout Robin and I'm so sorry for you and loss of your lovely daughter and what she had to go through with RETT's.

  14. What an awesome layout Robin! I lobe it!! Your daughter is a beautiful angel!

  15. Robin, I am so sorry for the loss of your daughter. I love your layout, what a wonderful way to honor her memory! Thanks for putting together this hop!

    Miranda :)

  16. gorgeous angel and lo. thanks for hosting this hop. lets all try to help with Rett,

  17. Your angel is beautiful and TFS your story & the awareness. from BL group e&H
    btw, great LO

  18. Robin thank you for helping us understand more about Rett Syndrome and getting the Hop up and running. I am so happy to be part of it thank you. Love your Mickey Layout and the pictures you added,. Such wonderful memories, always there for you to keep in your heart. I am saddened by the loss of your gorgeous daughter. She is now a little Angel watching you from above. HUGS always Maureen xxxxx

  19. I LOVE your LO and that paper is so awesome. Thank you for sharing with us what Rett Syndrome is and for doing this hop. So sorry to hear about your daughter but so happy for all the wonderful memories you have of her. BL

  20. Robin, your layout is beautiful and this hop is a wonderful way to raise awareness. I am sorry to hear that your daughter lost her fight. She is such a beautiful little girl. Thank you for sharing your memories of her with us. Sending you hugs and prayers.

  21. Gorgeous layout!! Thank you for sharing. Bloggie Love Janet

    1. Congrats Janet, you are the winner of the $10 gift certificate from Lucy Kelleher with Close to My Heart. If you could email me with your email so that I can pass the information on to Lucy that way she can get you your prize. Congrats again!

    2. Janet, I forgot to add this but here is my email address...

  22. Stephanie B's Creative Designs here. What a terrible disease!! I pray for a cure soon!! BL

  23. Thanks for all the information Sorry for your loss, My positive thoughts and prayers are with you and yours. Is it to much to put my order in for a coffee. I just love your blog!!! Is the Blog hop something we should participate in?? Well, have a nice beautiful day! God Bless and BL

  24. Stephanie B's Creative Designs here. I hope they find a cure for this nasty disease!! BL

    1. Hi Stephanie, thank you for visiting our hop. And Congrats you are the winner of the $10 gift certificate from Diana with DL Art Store. If you could please email me your email address so that I can pass it on to Diana that way she can get you your prize. My email address is... Congrats again!

  25. Stephanie B's Creative Designs here. Just stopping by to share some BOGGIE LOVE!! BL