Disney Blog Hop for Rett Syndrome Awareness

 

 

Happy Saturday
and 
Welcome to this year's Blog Hop for...

 

Rett Syndrome Awareness

 

In this hop we will be showing you many Disney themed projects while sharing with you about
Rett Syndrome.
If you have just stopped by my blog to visit with me, thank you and welcome, but please start at the beginning of the hop with our
Hostess, Robin from
Create-A-Latte.
We would not want you to miss any of these wonderful projects.

So, grab yourself a Latte', sit back and hop along with us as we share our projects with you.
 

 October is Rett Syndrome Awareness Month, so I wanted to help get the word out and what better way to do that than with a blog hop.
  
Rett Syndrome strikes without warning. A girl with Rett Syndrome usually starts out as a happy and healthy baby. Then something goes terribly wrong. She loses the ability to speak, she can't use her hands to play with toys, or to even feed herself, and she may lose the ability to walk. 
Despite their physical disabilities, girls with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought.   
Rett Syndrome is caused by a mutation of the MECP2  gene on the X chromosome.  
Rett Syndrome is found in all racial and ethnic groups throughout the world, and in every socioeconomic class.  
Rett  Syndrome affects 1 in 15,000 female births.  

*Symptoms of Rett Syndrome...

Rett Syndrome is a genetic neurological disorder that affects girls between 6 and 18 months of age. This regressive disease leads to lifelong handicaps, including loss of speech and voluntary muscle control, and is often misdiagnosed as Cerebral Palsy or Autism. Symptoms range from mild to severe, and almost always include...
*Developmental Regression or Plateau
*Near constant hand clasping or wringing
*Severe communication impairment
*Breathing problems
*Digestive issues
*Floppy arms and legs
*If able to walk, then with a shaky, unsteady gait, or toe-walking. But most do end up using a wheelchair for the most part.
*Scoliosis
*Seizures
*Slowing head growth
*Abnormal sleep patterns
*Transient loss of social engagement
*Poor circulation that can lead to cold and bluish arms and legs
*Anxiety
 
Little girls with Rett Syndrome are referred to as the..."Silent Angels"
As they typically loose the ability to speak.
 

Many individuals with Rett Syndrome live well into adulthood, although there are some that do not get that chance and end up losing their battle to Rett Syndrome at a very early age.
Most people including Doctors are not aware of Rett Syndrome, so, please help me get the word out about Rett Syndrome and hopefully the more that know the faster we can help in finding a cure.

 

This cause is very dear to me, as my youngest Daughter had Rett Syndrome. She was almost three years of age before they discovered that what she had was Rett Syndrome, as she was first diagnosed with Cerebral Palsy. Even though she could not walk without help, was in a wheelchair for the most part, lost most of her ability to talk, lost the use of her hands, and would have multiple seizures everyday, she was a very smart little girl. Now, these were just a few of the things that she would battle each and everyday. My little girl lost her battle to Rett Syndrome at the age of nine. My goal is to help get awareness out so that one day there will be a cure and that no more little Angels will loose their battle.

 

For more information you can visit...
http://www.rettsyndrome.org/

Now, are you ready for some blog candy???  We have a several wonderful and generous sponsors today...


1.  Lucy Kelleher
with Close to My Heart
$10 gift certificate for Close to My Heart products with Lucy 

Close To My Heart

lucyk.ctmh.com

2.  Dee's Delights Store
$20 Gift Certificate for Dee's Store

http://dees-deelights.com/deestore/

3. Heather Stafford with...
Gemini Red Creations
A floating locket and your choice of two floating charms 

 

http://www.geminiredcreations.com/shop/floating-lockets/
 
4.  Diana Larson with
DLART
$10 Gift Certificate for DLART Store

 

https://www.etsy.com/shop/DLART

5.  Robin Lane with
Create-A-Latte
A Collection of Snap Products by Simple Stories. Everything you need to put together your Disney memories.

The kit comes with an Album, a pack of Insta Pocket Pages, "Say Cheese" Journal Kit, and the "Say Cheese" Snap Pack.

  

Without further ado...Our Disney Projects.

For my project I put together a digital layout with a Mickey head snow globe featuring some pictures of my Daughters with Mickey, Minnie, and Goofy.

 

Name of this kit...

Mickey Vintage

 

Designed by...

Print and Fun

 

 

Be sure to head on over to....

Lori

for your next stop and see her wonderful project that she has made to share with you today.

If you get lost along the way here is the entire line up for today's Blog Hop.

 

 Robin L. ~  http://create-a-latte.blogspot.com/
 

  Lori  ~  http://www.scrappinmystressaway.blogspot.com
 
  An Geon ~  http://geoleoan.blogspot.gr/
 
 Dees-Deelights ~  http://dees-deelights.com
 
 Alicia ~  http://www.goldengoddessdesigns.blogspot.com
 
 Miranda ~  www.nanasscrapspot.com
 
 Eva ~  http://evasscrapsncards.blogspot.com/
 
  Annemarie's Art  ~  http://www.pizazzpixels.blogspot.com/
 
  Scrappin Madge ~  http://www.thescrappinlounge.com/
 
 Jenny ~  http://crazyaboutcricut.blogspot.com/
 
 DIANA L.~  http://dianamlarson.blogspot.com
 
  Ashley W  ~  http://marinewifesscrappinlife.blogspot.com
 
 Jessica  ~  http://craftinandstampin.blogspot.com 
 
 Connie ~  http://conniecancrop.blogspot.com
 
 Maureen ~  http://mozziesplace.blogspot.com
 
Judy ~  http://clipartist7.blogspot.com
 
 Shawnee ~ http://sunshinycards.blogspot.com

 Jearise ~ http://lorbysworld.blogspot.com/

Thank you for hopping along with us today, I hope that you have learned something about Rett Syndrome and that you will help spread the word so that we can make as many people aware of this as possible. I also hope that we have inspired you to get your craft on.